NCT05245123
Who may be able to join
Who might be able to join this trial:
For families affected by a rare disease:
- Your family includes at least one child aged 0 to 17 years who has been diagnosed with a rare solid tumour in the abdomen
- You and your child agree to take part in the study
- Both parents and children have a good enough understanding of German to complete the study materials
For families in the comparison (control) group:
- Your family includes at least one child aged 0 to 17 years who had surgery in their first 3 years of life that has not caused any ongoing or long-term health problems
- You and your child agree to take part in the study
- Both parents and children have a good enough understanding of German to complete the study materials
Who may not be able to join:
For families affected by a rare disease:
- The child has a serious physical, mental, or cognitive condition at this time that would make completing questionnaires too difficult or inappropriate (confirm with trial site)
For families in the comparison (control) group:
- The child has been diagnosed with a condition they were born with or a long-term (chronic) illness
⚠️ Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Trial details
Where this trial is recruiting
Primary endpoints
Quality of Life of the parents (EQ-5D); Health-related Quality of Life of the parents (SF-12); Severity of depression (PHQ-9); Severity of generalized anxiety disorder; Mental health of the parents (BSI-18); Health-related quality of life of the chronically-ill children/adolescents (Peds-QL 4.0); Psychiatric disorders of the chronically-ill children/adolescents (SDQ)
Can't join this trial?
Data last synced from ClinicalTrials.gov: 30 June 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.