Phase 3 Gaucher Disease Trial, Completed NCT00943111 Sponsor: Genzyme, a Sanofi Company Condition: Gaucher Disease
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Trial results

AI generated results summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI

According to the results reported on ClinicalTrials.gov, this trial involved people with Gaucher disease who were already being treated with a medicine called imiglucerase. The trial had two main phases. In the first phase (the Primary Analysis Period, lasting 52 weeks), 106 participants were switched to a tablet medicine called eliglustat and 54 continued on imiglucerase, for comparison. In the second, longer phase (up to 5 years), 152 participants received eliglustat. The trial was primarily measuring how many participants stayed "stable" — meaning their blood measures (haemoglobin levels and platelet counts) and organ sizes (spleen and liver) did not worsen beyond set thresholds. The reported data shows that during the 52-week period, 84.8% of participants taking eliglustat and 93.6% of participants taking imiglucerase met the criteria for remaining stable. During the longer 5-year phase, the percentage of eliglustat participants reported as remaining stable each year was 83.6% at year one, 75.65% at year two, 60.53% at year three, and 26.97% at year four. The trial also measured bone density using a scoring system that compares a person's bone strength to that of a healthy young adult (called a T-score and a Z-score). The reported data shows that changes in these bone scores from the start of the trial to week 52 were very small in both groups — generally less than a tenth of a point in either direction — across measurements of the spine and femur (thigh bone). These are the results as reported to ClinicalTrials.gov. They are not medical advice — always discuss what they mean for you with your doctor.

These are the results as reported to ClinicalTrials.gov, not medical advice. Verify independently with the trial site and discuss what they mean for you with your doctor.

Phase 3 Gaucher Disease Trial, Completed

NCT00943111
Completed Phase 3 🇦🇺 Australian site

Who may be able to join

AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI

Who might be able to join this trial:

  • You (and/or your parent or legal guardian) are willing and able to sign a consent form before any study activities begin
  • You are at least 18 years old at the time of joining the study
  • You have a confirmed diagnosis of Gaucher disease type 1
  • You have been receiving enzyme replacement therapy (ERT) for at least 3 years, and for at least 6 of the 9 months before joining, your monthly dose was within a specific range (confirm with trial site)
  • You have already met the standard treatment goals for Gaucher disease before joining the study
  • If you are a woman who could become pregnant, you must have a negative pregnancy test before starting and must use an accepted form of birth control throughout the study

Who may not be able to join:

  • You have had part or all of your spleen removed within the last 3 years
  • You have taken a type of Gaucher disease medication called substrate reduction therapy in the last 6 months
  • You have Gaucher disease type 2 or type 3, or there is any suspicion you may have type 3
  • You have another significant health condition — such as heart, kidney, liver, lung, nerve, digestive, hormonal, or mental health problems — that could affect the study results or your safety (confirm with trial site)
  • You have tested positive for HIV, Hepatitis C, or Hepatitis B
  • You have taken part in another clinical trial or received an experimental treatment within the last 30 days
  • You are currently pregnant or breastfeeding

Important: Always verify eligibility with the trial site directly before applying.

Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.

This is a simplified plain English summary of the eligibility criteria. Full criteria are set by the trial investigators and may include additional requirements not shown here. Never self-exclude from a trial based on this summary. Contact the trial site directly to confirm your eligibility.
Last synced 28 July 2026
Phase 3: approximately ~65% of drugs entering this phase reach regulatory approval, based on published industry-wide historical data. This is not specific to this trial.
Phase success rates shown are historical industry-wide averages based on published data. They are not a prediction for this specific trial or your individual situation.

Contact this trial

Principal Investigator: Medical Monitor, Genzyme, a Sanofi Company

Australian sites

Royal Perth Hospital, Perth, WA,

Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.

GP referral letter

Print a one-page summary to share with your doctor.

Trial details

Status
Completed
Phase
Phase 3
Sponsor
Genzyme, a Sanofi Company
Registry
ClinicalTrials.gov
Start date
1 September 2009
Est. completion
1 November 2012

Where this trial is recruiting

🇦🇷 Argentina 🇦🇺 Australia 🇧🇷 Brazil 🇨🇦 Canada 🇪🇬 Egypt 🇫🇷 France 🇩🇪 Germany 🇮🇹 Italy 🇷🇺 Russia 🇪🇸 Spain 🇬🇧 United Kingdom 🇺🇸 United States

1 site(s) in Australia. Confirm current status and contact details directly with the trial site.

Primary endpoints

Percentage of Participants Who Remained Stable for 52 Weeks During the Primary Analysis Period; Percentage of Participants Who Remained Stable Annually for 4 Years During the LTTP

Can't join this trial?

Expanded access pathways

If this trial is not available to you, other access pathways may exist. In Australia, the TGA Special Access Scheme allows access to unapproved therapeutic goods for individual patients.

TGA Special Access Scheme information

Find other recruiting trials on ClinicalTrials.gov

Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.

Trial recruitment status can change without notice between our nightly data updates. Always contact the trial site directly to confirm current recruitment status before making any decisions or travel arrangements.

View original record on ClinicalTrials.gov