Rare Disease Trial, Recruiting NCT01209000 Sponsor: University of Michigan Condition: Rare Disease
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Rare Disease Trial, Recruiting

NCT01209000
Recruiting Not Applicable

Who may be able to join

AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI

Who might be able to join this trial:

Group A (Biopsy Group):

  • You have been recently diagnosed, or are expected to be diagnosed, with a kidney condition called FSGS, MCD, or MN (or you are a child who has not yet had a kidney biopsy but has one of these diagnoses)
  • Your urine tests show a high level of protein loss (at or above a certain threshold), either measured over 24 hours or through a spot urine test, at diagnosis or within 3 months of your screening visit
  • You are already scheduled to have a kidney biopsy

Group B (No Biopsy Group — for children/young people):

  • You are under 19 years old
  • You have had less than 30 days of immune-suppressing medication since your condition first appeared
  • Your urine tests show a significant amount of protein, along with either swelling in the body, or low protein levels in your blood (confirm with trial site for exact measurements)

Who may not be able to join:

  • You have previously received a transplanted solid organ (such as a kidney, liver, or heart)
  • You have a kidney condition diagnosis that has not been confirmed by a kidney biopsy (confirm with trial site)
  • You have been diagnosed with, or show signs of, lupus (a condition where the immune system attacks the body)
  • You have evidence of certain other kidney or related diseases, such as Alport syndrome, Nail Patella syndrome, diabetic kidney disease, IgA nephritis, multiple myeloma, or certain urinary tract or kidney structural problems
  • You have a known serious illness at the time of joining the trial that means you are not expected to live longer than 6 months
  • You are unwilling or unable to give full informed consent to take part
  • You are unwilling to follow the study's required procedures and visit schedule
  • You are currently living in an institution such as a prison

Important: Always verify eligibility with the trial site directly before applying.

Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.

This is a simplified plain English summary of the eligibility criteria. Full criteria are set by the trial investigators and may include additional requirements not shown here. Never self-exclude from a trial based on this summary. Contact the trial site directly to confirm your eligibility.
Last synced 26 July 2026
This study is not part of the standard drug-approval phase pathway (for example an observational, device, behavioural, or registry study), so a phase success rate does not apply.

Contact this trial

Principal Investigator: Matthias Kretzler, MD, University of Michigan

Phone: 734-615-5021

Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.

GP referral letter

Print a one-page summary to share with your doctor.

Trial details

Status
Recruiting
Phase
Not Applicable
Registry
ClinicalTrials.gov
Start date
1 April 2010
Est. completion
31 December 2030

Where this trial is recruiting

🇨🇦 Canada 🇺🇸 United States

Primary endpoints

Event rate of change in urinary protein excretion and renal function.; Rate of change in renal function.

Can't join this trial?

Expanded access pathways

If this trial is not available to you, other access pathways may exist. In Australia, the TGA Special Access Scheme allows access to unapproved therapeutic goods for individual patients.

TGA Special Access Scheme information

Find other recruiting trials on ClinicalTrials.gov

Data last synced from ClinicalTrials.gov: 26 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.

Trial recruitment status can change without notice between our nightly data updates. Always contact the trial site directly to confirm current recruitment status before making any decisions or travel arrangements.

View original record on ClinicalTrials.gov