Rare Disease Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
- People of any age who have been diagnosed with a rare histiocytic disorder (a group of conditions involving abnormal growth of certain immune cells)
- People whose diagnosis was made from January 1, 1995, up to the present day, including those diagnosed in the future
- People who were diagnosed either before or after this registry opened
- People who have signed an informed consent form, or whose parent or legal guardian has signed on their behalf
- People who have cognitive impairment may be included, provided a parent or legal guardian provides consent on their behalf
- In cases where a patient has passed away, their information may be included in the registry, provided the family is contacted at least 6 months after the death, and not on the child's birthday or the anniversary of their death
Who may not be able to join:
- People for whom a signed informed consent form has not been provided
- People whose diagnosis is something other than a rare histiocytic disorder
- People who were diagnosed before the year 1995
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Principal Investigator: Oussama Abla, MD, The Hospital for Sick Children
Phone: 416-813-7879
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Collecting data on disease presentation, treatments used and treatment outcomes over time for patients diagnosed with RHD to better understand the diseases and optimize the treatments.
Can't join this trial?
Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.