Rare Disease Trial, Recruiting (NCT03169010)

Rare Disease Trial, Recruiting NCT03169010 Sponsor: China National Center for Cardiovascular Diseases Condition: Rare Disease

Printed from Voxsanity (voxsanity.com.au) — NCT03169010 — Data sourced from ClinicalTrials.gov. Verify directly with the trial site before attending. Not medical advice.

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Who may be able to join

AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI

Who might be able to join this trial:

You are willing and able to agree to take part in the study and sign a consent form.
You have been diagnosed with one of the following specific types of pulmonary hypertension (high blood pressure in the lungs): idiopathic (unknown cause), hereditary (genetic), related to a condition called hereditary hemorrhagic telangiectasia, related to blocked veins in the lungs, related to abnormal blood vessel growths in the lungs, related to blocked portal vein blood vessels, related to certain types of congenital heart disease, or caused by chronic blood clots in the lungs.
You have already had a procedure called a right heart catheterization (a test where a thin tube is inserted to measure pressure in the heart and lungs) to confirm your diagnosis.

Who may not be able to join:

You are unwilling or unable to sign a written consent form to take part in the study.
You do not have one of the rare specific types of pulmonary hypertension listed above.

Note for healthy volunteers (controls):

People who consider themselves to be in good health and are willing to sign a consent form may also be eligible to participate as a comparison group.

Important: Always verify eligibility with the trial site directly before applying.

Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.

This is a simplified plain English summary of the eligibility criteria. Full criteria are set by the trial investigators and may include additional requirements not shown here. Never self-exclude from a trial based on this summary. Contact the trial site directly to confirm your eligibility.

Last synced 26 July 2026

This study is not part of the standard drug-approval phase pathway (for example an observational, device, behavioural, or registry study), so a phase success rate does not apply.

Contact this trial

Principal Investigator: Zhi-Cheng JING, MD. PhD., Chinese Academy of Medical Sciences, Fuwai Hospital

Phone: +861088322267

Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.

GP referral letter

Print a one-page summary to share with your doctor.

Voxsanity

Clinical trials and treatments, explained plainly · voxsanity.com.au

Date:

To: My Doctor

Re: Clinical trial enquiry

I am writing to enquire about the following clinical trial which may be relevant to my care:

Trial: NCT03169010

Sponsor: China National Center for Cardiovascular Diseases

Phase: Not Applicable

Status: Recruiting

Condition: Rare Disease

Trial contact: +861088322267

More information: https://clinicaltrials.gov/study/NCT03169010

Eligibility summary (AI generated)

Written by an AI model from ClinicalTrials.gov eligibility criteria and checked on a sample basis. Please confirm against the original criteria.

Who might be able to join this trial:

You are willing and able to agree to take part in the study and sign a consent form.
You have been diagnosed with one of the following specific types of pulmonary hypertension (high blood pressure in the lungs): idiopathic (unknown cause), hereditary (genetic), related to a condition called hereditary hemorrhagic telangiectasia, related to blocked veins in the lungs, related to abnormal blood vessel growths in the lungs, related to blocked portal vein blood vessels, related to certain types of congenital heart disease, or caused by chronic blood clots in the lungs.
You have already had a procedure called a right heart catheterization (a test where a thin tube is inserted to measure pressure in the heart and lungs) to confirm your diagnosis.

Who may not be able to join:

You are unwilling or unable to sign a written consent form to take part in the study.
You do not have one of the rare specific types of pulmonary hypertension listed above.

Note for healthy volunteers (controls):

People who consider themselves to be in good health and are willing to sign a consent form may also be eligible to participate as a comparison group.

Important: Always verify eligibility with the trial site directly before applying.

Access in Australia: A treatment being studied in a clinical trial is generally not yet listed on the PBS. Where a medicine is not approved or not available through a trial, the TGA Special Access Scheme may allow a doctor to access unapproved therapeutic goods for individual patients. See voxsanity.com.au/sas-navigator/ for a plain English explainer.

This information was sourced from ClinicalTrials.gov via Voxsanity (data last synced 26 July 2026). It is not medical advice. Please verify the trial's current status directly with the trial site before acting.

Trial details

Status

Recruiting

Phase

Not Applicable

Sponsor

China National Center for Cardiovascular Diseases

Registry

ClinicalTrials.gov

Start date

6 May 2017

Est. completion

31 December 2040

Where this trial is recruiting

🇨🇳 China

Primary endpoints

Survival Rate of Participants; Lung transplantation; Change in New York Heart Association (NYHA) functional class; Change in 6 mint walk distance

Can't join this trial?

Expanded access pathways

If this trial is not available to you, other access pathways may exist. In Australia, the TGA Special Access Scheme allows access to unapproved therapeutic goods for individual patients.

TGA Special Access Scheme information

Find other recruiting trials on ClinicalTrials.gov

Data last synced from ClinicalTrials.gov: 26 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.

Trial recruitment status can change without notice between our nightly data updates. Always contact the trial site directly to confirm current recruitment status before making any decisions or travel arrangements.

View original record on ClinicalTrials.gov