Spinal Muscular Atrophy Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
- You have been diagnosed with ALS (Lou Gehrig's disease) or a related condition, such as primary lateral sclerosis or progressive muscular atrophy.
- You receive your medical care at a clinic or hospital that uses a health records system called Epic.
- You are able and willing to give your consent to participate, or someone you have legally designated can give consent on your behalf.
Who may not be able to join:
- You are not able to understand either English or Spanish.
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Principal Investigator: Michael Benatar, MBChB, MS, DPhil, University of Miami
Phone: 1-844-837-1031
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Using the ALS Toolkit for collecting and using electronic health record data for research purposes
Can't join this trial?
Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.