Muscular Dystrophy Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
- You have been diagnosed with Facioscapulohumeral Muscular Dystrophy (FSHD), or your diagnosis is currently being confirmed.
- You live in the United Kingdom.
Who may not be able to join:
- You have been diagnosed with a different neuromuscular disease (a condition affecting the nerves and muscles) other than FSHD.
- You live outside of the United Kingdom.
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Principal Investigator: Chiara Marini-Bettolo, MD, PhD, John Walton Muscular Dystrophy Research Centre
Phone: 0191 2418640
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Patient questionnaire; McGill Pain Questionnaire; FSHD Pain Questionnaire; The Short Form Health Survey (SF-36); The Individualized Neuromuscular Quality of Life questionnaire (INQoL); Scapular fixation questionnaire; Clinician questionnaire
Can't join this trial?
Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.