Sickle Cell Disease Trial, Recruiting NCT04166526 Sponsor: Boston Children's Hospital Condition: Sickle Cell Disease
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Sickle Cell Disease Trial, Recruiting

NCT04166526
Recruiting Not Applicable

Who may be able to join

AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI

Who might be able to join this trial:

This trial has four separate groups. People may be considered for one of the following:

  • Group 1 (Healthy volunteers): Children and teenagers aged 8–18 who do not have sickle cell disease (SCD).
  • Group 2 (SCD patients without certain treatments): Children and teenagers aged 8–18 who have sickle cell disease, have not had gene therapy or a bone marrow transplant, are not receiving regular ongoing blood transfusions, and have not had any blood transfusion in the past 3 months.
  • Group 3 (SCD patients who have had gene therapy): Children and teenagers aged 8–18 who have sickle cell disease and have already received gene therapy at least one month before joining the trial.
  • Group 4 (SCD patients on regular transfusions): Children and teenagers aged 8–18 who have sickle cell disease and are currently receiving regular ongoing blood transfusions.

Who may not be able to join:

  • People who have an electrical device implanted in their body, such as a pacemaker or an infusion pump.
  • People who have metal implants in their body, such as surgical clips, an artificial heart valve with steel parts, metal fragments or shrapnel, or certain other metal devices.
  • People who are wearing or have ferromagnetic (strongly magnetic) metal objects on or in their body, such as certain jewellery or metal clips.
  • Women of childbearing age who are pregnant, think they may be pregnant, are breastfeeding, or are trying to become pregnant.
  • People who have a medical condition that makes them prone to seizures or who are likely to experience severe claustrophobia (fear of enclosed spaces).
  • People who have a higher-than-normal risk of cardiac arrest (when the heart suddenly stops).
  • People who would need sedation (medication to make them sleepy or calm) in order to undergo an MRI scan.

Important: Always verify eligibility with the trial site directly before applying.

Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.

This is a simplified plain English summary of the eligibility criteria. Full criteria are set by the trial investigators and may include additional requirements not shown here. Never self-exclude from a trial based on this summary. Contact the trial site directly to confirm your eligibility.
Last synced 26 July 2026
This study is not part of the standard drug-approval phase pathway (for example an observational, device, behavioural, or registry study), so a phase success rate does not apply.

Contact this trial

Principal Investigator: Ellen Grant, MD, Boston Children's Hospital

Phone: 857-218-5111

Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.

GP referral letter

Print a one-page summary to share with your doctor.

Trial details

Status
Recruiting
Phase
Not Applicable
Sponsor
Boston Children's Hospital
Registry
ClinicalTrials.gov
Start date
25 October 2019
Est. completion
1 May 2027

Where this trial is recruiting

🇺🇸 United States

Primary endpoints

Accuracy of FDNIRS-DCS in measuring blood oxygenation of the brain

Can't join this trial?

Expanded access pathways

If this trial is not available to you, other access pathways may exist. In Australia, the TGA Special Access Scheme allows access to unapproved therapeutic goods for individual patients.

TGA Special Access Scheme information

Find other recruiting trials on ClinicalTrials.gov

Data last synced from ClinicalTrials.gov: 26 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.

Trial recruitment status can change without notice between our nightly data updates. Always contact the trial site directly to confirm current recruitment status before making any decisions or travel arrangements.

View original record on ClinicalTrials.gov