Phase 3 Rare Disease Trial, Recruiting NCT04220190 Sponsor: Rapa Therapeutics LLC Condition: Rare Disease
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Phase 3 Rare Disease Trial, Recruiting

NCT04220190
Recruiting Phase 3

Who may be able to join

AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI

Who might be able to join this trial:

  • You are 18 years of age or older
  • You have been diagnosed with ALS (either sporadic or familial) that meets specific diagnostic standards set by a leading neurology organization (confirm with trial site)
  • Your ALS symptoms began no more than 24 months ago
  • Your ALS function rating score falls between 34 and 45 on a standard scale used to measure daily functioning (confirm with trial site)
  • A blood test shows your immune cell count is high enough to produce the treatment used in this trial (confirm with trial site)
  • If you are already taking riluzole, edaravone, or sodium phenylbutyrate/taurursodiol for ALS, you have been on a stable dose for at least 30 days before screening
  • It has been at least 2 weeks since any major surgery or participation in another experimental treatment
  • Any side effects from previous treatments have mostly resolved (confirm with trial site)
  • Your kidney function, liver function, and bilirubin levels are within acceptable ranges based on blood tests (confirm with trial site)
  • Your lung breathing capacity is at least 70% of what is considered normal for someone your age and size
  • You have no history of unusual or abnormal bleeding
  • You are willing and able to give written consent to participate

Who may not be able to join:

  • You currently have an active infection that is not under control
  • You have high blood pressure that requires more than 3 medications to manage
  • You have had a blood clot in your lungs within the past 6 months
  • You have significant heart problems, such as a heart attack in the last 6 months, severe heart failure, uncontrolled chest pain, serious irregular heartbeat, or signs of reduced blood flow to the heart
  • You have a history of heart bypass surgery or a procedure to open blocked arteries (though you may still be considered on a case-by-case basis after a heart evaluation)
  • You have tested positive for HIV, hepatitis B, or hepatitis C
  • You are currently pregnant or breastfeeding
  • You are able to have children (or have a partner who is able to have children) and are unwilling to use contraception during the trial
  • The lead doctor of the trial determines that joining the trial would pose an unacceptable health or mental health risk to you

Important: Always verify eligibility with the trial site directly before applying.

Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.

This is a simplified plain English summary of the eligibility criteria. Full criteria are set by the trial investigators and may include additional requirements not shown here. Never self-exclude from a trial based on this summary. Contact the trial site directly to confirm your eligibility.
Last synced 28 July 2026
Phase 3: approximately ~65% of drugs entering this phase reach regulatory approval, based on published industry-wide historical data. This is not specific to this trial.
Phase success rates shown are historical industry-wide averages based on published data. They are not a prediction for this specific trial or your individual situation.

Contact this trial

Principal Investigator: Daniel Fowler, M.D., Rapa Therapeutics LLC

Phone: (301) 518-3104

Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.

GP referral letter

Print a one-page summary to share with your doctor.

Trial details

Status
Recruiting
Phase
Phase 3
Sponsor
Rapa Therapeutics LLC
Registry
ClinicalTrials.gov
Start date
2 January 2025
Est. completion
1 July 2026

Where this trial is recruiting

🇺🇸 United States

Primary endpoints

In the expansion cohort enrolling standard-risk pwALS, determine the feasibility and safety of the highest established safe dose of RAPA-501 (80 x 10^6 cells per infusion).

Can't join this trial?

Expanded access pathways

If this trial is not available to you, other access pathways may exist. In Australia, the TGA Special Access Scheme allows access to unapproved therapeutic goods for individual patients.

TGA Special Access Scheme information

Find other recruiting trials on ClinicalTrials.gov

Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.

Trial recruitment status can change without notice between our nightly data updates. Always contact the trial site directly to confirm current recruitment status before making any decisions or travel arrangements.

View original record on ClinicalTrials.gov