Muscular Dystrophy Trial, Recruiting (NCT05102916)

Muscular Dystrophy Trial, Recruiting NCT05102916 Sponsor: University of Bern Condition: Muscular Dystrophy

Printed from Voxsanity (voxsanity.com.au) — NCT05102916 — Data sourced from ClinicalTrials.gov. Verify directly with the trial site before attending. Not medical advice.

Back to Muscular Dystrophy

Who may be able to join

AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI

Who might be able to join this trial:

You have been diagnosed with a neuromuscular disease (a condition affecting the muscles and/or the nerves that control them)
You are a child, teenager, or adult
You live in Switzerland or receive treatment for your condition in Switzerland
You have agreed to take part and given your consent (or a parent/guardian has consented on behalf of a child)

Who may not be able to join:

People whose diagnosis has not been confirmed — ideally through genetic testing, or at minimum through a muscle/nerve biopsy and/or a nerve and muscle electrical activity test, following standard international guidelines for their specific condition (confirm with trial site)

Important: Always verify eligibility with the trial site directly before applying.

Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.

This is a simplified plain English summary of the eligibility criteria. Full criteria are set by the trial investigators and may include additional requirements not shown here. Never self-exclude from a trial based on this summary. Contact the trial site directly to confirm your eligibility.

Last synced 28 July 2026

This study is not part of the standard drug-approval phase pathway (for example an observational, device, behavioural, or registry study), so a phase success rate does not apply.

Contact this trial

Principal Investigator: Claudia E Kuehni, Prof. MD, Institute of Social and Preventive Medicine (ISPM), University of Bern

Phone: +41 (0)31 684 35 07

Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.

GP referral letter

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Voxsanity

Clinical trials and treatments, explained plainly · voxsanity.com.au

Date:

To: My Doctor

Re: Clinical trial enquiry

I am writing to enquire about the following clinical trial which may be relevant to my care:

Trial: NCT05102916

Sponsor: University of Bern

Phase: Not Applicable

Status: Recruiting

Condition: Muscular Dystrophy

Trial contact: +41 (0)31 684 35 07

More information: https://clinicaltrials.gov/study/NCT05102916

Eligibility summary (AI generated)

Written by an AI model from ClinicalTrials.gov eligibility criteria and checked on a sample basis. Please confirm against the original criteria.

Who might be able to join this trial:

You have been diagnosed with a neuromuscular disease (a condition affecting the muscles and/or the nerves that control them)
You are a child, teenager, or adult
You live in Switzerland or receive treatment for your condition in Switzerland
You have agreed to take part and given your consent (or a parent/guardian has consented on behalf of a child)

Who may not be able to join:

People whose diagnosis has not been confirmed — ideally through genetic testing, or at minimum through a muscle/nerve biopsy and/or a nerve and muscle electrical activity test, following standard international guidelines for their specific condition (confirm with trial site)

Important: Always verify eligibility with the trial site directly before applying.

Access in Australia: A treatment being studied in a clinical trial is generally not yet listed on the PBS. Where a medicine is not approved or not available through a trial, the TGA Special Access Scheme may allow a doctor to access unapproved therapeutic goods for individual patients. See voxsanity.com.au/sas-navigator/ for a plain English explainer.

This information was sourced from ClinicalTrials.gov via Voxsanity (data last synced 28 July 2026). It is not medical advice. Please verify the trial's current status directly with the trial site before acting.

Trial details

Status

Recruiting

Phase

Not Applicable

Sponsor

University of Bern

Registry

ClinicalTrials.gov

Start date

20 June 2018

Est. completion

1 January 2071

Where this trial is recruiting

🇨🇭 Switzerland

Primary endpoints

Personal data; Initial symptoms; Age at initial symptoms and diagnosis; Family history; Investigations; Diagnosis; Change of living status; Change of living status II; Change in height; Change in weight; Change in head circumference; Change in motor development and motor functions; Change in musculoskeletal system; History of surgeries; Change in cardiac function; Change in pulmonary function; Change in nutritional habits; Change in cognition; Change in education; Change in therapies; Change in orthopaedic situation; Change in treatments; Change in side effects; Change in comorbidities; Histor...

Can't join this trial?

Expanded access pathways

If this trial is not available to you, other access pathways may exist. In Australia, the TGA Special Access Scheme allows access to unapproved therapeutic goods for individual patients.

TGA Special Access Scheme information

Find other recruiting trials on ClinicalTrials.gov

Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.

Trial recruitment status can change without notice between our nightly data updates. Always contact the trial site directly to confirm current recruitment status before making any decisions or travel arrangements.

View original record on ClinicalTrials.gov