Rare Disease Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
- You are able to understand the study and are willing to sign a consent form agreeing to take part
- You can read and speak English
- You are 18 years old or older
- You are a parent or legal guardian of a child under 18 who has been diagnosed with a RASopathy condition, such as NF1, Noonan Syndrome, Legius Syndrome, CFC, Costello Syndrome, or another related condition
- The child with the RASopathy condition lives with you at least half of the time
- You have access to a computer, smartphone, and internet, or you are willing to use a device provided by the study team
- You score 15 or higher on a specific parenting stress questionnaire used by the study, meaning you are experiencing a moderate or higher level of parenting stress
Who may not be able to join:
- Another caregiver from your household is already enrolled in this study (if two caregivers from the same home wish to participate, only one can formally enroll — the other may receive some study materials to use independently)
- You have a psychiatric illness, cognitive difficulties, or other circumstances that are not well-controlled and that a study psychologist believes would make it difficult for you to fully take part in the study (confirm with trial site)
- You are currently taking part in, or planning to join, another program specifically focused on reducing parenting stress during the time this study is running (note: getting help for other mental health concerns is still allowed, as long as parenting stress is not the main focus)
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Principal Investigator: Staci M Peron, Ph.D., National Cancer Institute (NCI)
Phone: (240) 760-6025
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Feasibility & Acceptability; Changes in PSS
Can't join this trial?
Data last synced from ClinicalTrials.gov: 27 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.