Rare Disease Trial, Recruiting NCT05499091 Sponsor: University Hospital, Angers Condition: Rare Disease
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Rare Disease Trial, Recruiting

NCT05499091
Recruiting Not Applicable

Who may be able to join

AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI

Who might be able to join this trial:

  • You are a child or adult who has a rare disease where the biological cause or how it works in the body is not fully known or understood.
  • You are already registered in the BaMaRa database, which is the French national database for people with rare diseases.
  • You are covered by the French social security (health insurance) system.
  • You (or your legal guardian, if applicable) have signed a consent form agreeing to take part.
  • You are the parent of a child or adult with a rare disease that is not fully understood, you are registered in the BaMaRa database, you are covered by French social security, and you have signed a consent form for yourself.
  • You are the brother or sister of someone with a rare disease that is not fully understood, you are registered in the BaMaRa database, you are covered by French social security, and you or your legal guardian have signed a consent form.

Who may not be able to join:

  • You do not have a good enough understanding of the French language to take part.
  • You are currently under a legal or administrative measure that restricts your freedom (confirm with trial site).
  • You are currently receiving involuntary or forced psychiatric care.

Important: Always verify eligibility with the trial site directly before applying.

Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.

This is a simplified plain English summary of the eligibility criteria. Full criteria are set by the trial investigators and may include additional requirements not shown here. Never self-exclude from a trial based on this summary. Contact the trial site directly to confirm your eligibility.
Last synced 28 July 2026
This study is not part of the standard drug-approval phase pathway (for example an observational, device, behavioural, or registry study), so a phase success rate does not apply.

Contact this trial

Principal Investigator: Estelle COLIN, MD-PhD, escolin@chu-angers.fr

Phone: 02.41.35.34.70

Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.

GP referral letter

Print a one-page summary to share with your doctor.

Trial details

Status
Recruiting
Phase
Not Applicable
Sponsor
University Hospital, Angers
Registry
ClinicalTrials.gov
Start date
10 October 2022
Est. completion
10 October 2042

Where this trial is recruiting

🇫🇷 France

Primary endpoints

Identification of at least 80 new genes implicated in rare diseases via high-throughput sequencing technics and through functional studies.; Collecting biological samples to build up a biobank; Candidat gene validation through functional studies.

Can't join this trial?

Expanded access pathways

If this trial is not available to you, other access pathways may exist. In Australia, the TGA Special Access Scheme allows access to unapproved therapeutic goods for individual patients.

TGA Special Access Scheme information

Find other recruiting trials on ClinicalTrials.gov

Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.

Trial recruitment status can change without notice between our nightly data updates. Always contact the trial site directly to confirm current recruitment status before making any decisions or travel arrangements.

View original record on ClinicalTrials.gov