Muscular Dystrophy Trial, Recruiting NCT05989620 Sponsor: Virginia Commonwealth University Condition: Muscular Dystrophy
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Muscular Dystrophy Trial, Recruiting

NCT05989620
Recruiting Not Applicable

Who may be able to join

AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI

Who might be able to join this trial:

  • You are between 6 and 50 years old at the time of joining the trial
  • You have muscle weakness that a doctor has noticed during a physical examination, mainly affecting muscles closer to the center of the body (like hips, thighs, or shoulders)
  • You have been confirmed through genetic testing to have Limb-Girdle Muscular Dystrophy (LGMD), Myotonic Dystrophy Type 2 (DM2), or Late-Onset Pompe Disease (LOPD)
  • Your lung breathing capacity (measured by a breathing test) is above 30% of the normal expected level

Who may not be able to join:

  • You have another health condition that, in the opinion of the trial doctor, could make testing unsafe or make it harder to understand the results of the trial
  • You are currently taking part in another clinical trial that involves receiving an experimental treatment or product

Important: Always verify eligibility with the trial site directly before applying.

Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.

This is a simplified plain English summary of the eligibility criteria. Full criteria are set by the trial investigators and may include additional requirements not shown here. Never self-exclude from a trial based on this summary. Contact the trial site directly to confirm your eligibility.
Last synced 28 July 2026
This study is not part of the standard drug-approval phase pathway (for example an observational, device, behavioural, or registry study), so a phase success rate does not apply.

Contact this trial

Principal Investigator: Nicholas Johnson, MD, Virginia Commonwealth University

Phone: 804-828-6318

Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.

GP referral letter

Print a one-page summary to share with your doctor.

Trial details

Status
Recruiting
Phase
Not Applicable
Registry
ClinicalTrials.gov
Start date
18 October 2023
Est. completion
1 October 2028

Where this trial is recruiting

🇺🇸 United States

Primary endpoints

To explore the suitability and feasibility of the North Star Assessment for LGMD (NSAD) in the muscular dystrophies

Can't join this trial?

Expanded access pathways

If this trial is not available to you, other access pathways may exist. In Australia, the TGA Special Access Scheme allows access to unapproved therapeutic goods for individual patients.

TGA Special Access Scheme information

Find other recruiting trials on ClinicalTrials.gov

Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.

Trial recruitment status can change without notice between our nightly data updates. Always contact the trial site directly to confirm current recruitment status before making any decisions or travel arrangements.

View original record on ClinicalTrials.gov