Spinal Muscular Atrophy Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
- You have been formally diagnosed with a neuromuscular disease (such as muscular dystrophy, spinal muscular atrophy, ALS, Charcot-Marie-Tooth disease, or a similar condition affecting the muscles or nerves), confirmed through genetic testing, a muscle biopsy, or nerve/muscle tests, and your arms are notably weak as a result.
- You are older than 10 years of age.
- Your upper arm and hand function falls within a specific middle range on a standard medical rating scale called the Brooke Upper Extremity Functional Rating Scale, scoring between 2 and 5 (confirm with trial site).
- You have significant weakness in your shoulder, specifically scoring below a certain level on a standard muscle strength test called the Manual Muscle Test (confirm with trial site).
- You (or your legal guardian or representative) are able and willing to sign a consent form agreeing to take part in the study.
Who may not be able to join:
- You are unwilling or unable to give your consent (or have someone give it on your behalf) to take part.
- Your score on the Brooke Upper Extremity Functional Rating Scale is at either extreme — a 1 or a 6 (confirm with trial site).
- You have significant memory or thinking difficulties that would stop you from being able to use a shoulder support device properly.
- You have any other health condition that the trial doctor believes would make it unsafe or unsuitable for you to take part.
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Principal Investigator: Woo Hyung Lee, MD, PhD, Seoul National University Hospital
Phone: +82-10-9381-2299
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Performance of the upper limb module 2.0 (PUL 2.0); Active Range of motion; Functional workspace; Goal Attainment Scale (GAS); Surface electromyography (sEMG); Heart rate; Blood pressure; Numeral Rating Scale for Pain; Box and block test
Can't join this trial?
Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.