Rare Disease Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
For people with Baker Gordon syndrome:
- You have been diagnosed with Baker Gordon syndrome confirmed through genetic testing
- You are between 0 and 99 years old
- You are able to share your medical records and test results with the research team
- You are able to complete tests and questionnaires as part of the study
For primary caregivers or legal representatives of participants:
- You are 18 years old or older
- You are the legal caregiver of someone diagnosed with Baker Gordon syndrome
- You are willing to follow the study procedures, as agreed with the research team
- You are willing to sign a consent form
- You are able to understand all the information provided about the study, as confirmed by the research team
Who may not be able to join:
For people with Baker Gordon syndrome:
- You have another condition (not related to Baker Gordon syndrome) that also affects brain development or development of the nervous system
For primary caregivers or legal representatives:
- You are under 18 years old
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Principal Investigator: W. David Arnold, MD, University of Missouri-Columbia
Phone: 573-884-2924
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Collection of relevant medical data (retrospective and prospective); Neurological Assessment Scale; Clinical Global Impressions Scale - Practitioner; Pediatric Evaluation of Disability Inventory; Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT)
Can't join this trial?
Data last synced from ClinicalTrials.gov: 27 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.