Rare Disease Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
- You have a confirmed diagnosis of facioscapulohumeral muscular dystrophy (FSHD), myotonic dystrophy type 1 (DM1), or Charcot-Marie-Tooth disease (CMT)
- You are between 18 and 70 years old at the time of signing the consent form
- You are of any gender
- You are able to stand up, rise from a chair, and walk at least 10 meters, with or without a walking aid
- A neurologist or physiotherapist has confirmed that you would benefit from rehabilitation
- You are able to understand and follow instructions in Norwegian
- You are able to give your own informed consent to take part in the trial
Who may not be able to join:
- You are pregnant or planning to become pregnant
- You have another neurological or physical health condition that significantly affects your ability to move or be physically active, such as severe arthritis, serious heart failure, or an ongoing cancer treatment
- You have a history of alcohol or drug abuse recorded in your medical notes
- You have a history of not following medical advice or attending medical follow-up appointments
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Principal Investigator: Kristin Ørstavik, MD, PhD, Oslo University Hospital
Phone: +4792422126
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Dynamic balance assessed using Mini-Balance Evalulation Systems Test (Mini-BESTest)
Can't join this trial?
Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.