Rare Disease Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
- You must be 18 years old or older when you sign up.
- You must have been diagnosed with a type of blood condition called a myeloproliferative neoplasm (MPN), which includes: polycythemia vera (PV), essential thrombocythemia (ET), primary myelofibrosis (PMF), secondary myelofibrosis (post-ET or post-PV MF), pre-fibrotic primary myelofibrosis (pre-PMF), MPN-unclassifiable, MPN in accelerated phase, MPN in blast phase, post-MPN acute myeloid leukemia (AML), or MDS/MPN overlap syndrome — as confirmed by current medical guidelines.
- People who were originally diagnosed with one of these conditions and have since had a stem cell or bone marrow transplant may also be eligible.
- You must be able to give your agreement to take part, either yourself or through a legally appointed representative (such as a guardian).
- You must be willing to share your health information, including medical records and lab results.
- You must be willing to fill out regular surveys about your symptoms and how you are feeling.
Who may not be able to join:
- People under 18 years of age are not eligible.
- If you are unable to give consent yourself and do not have a legally appointed representative to do so on your behalf, you would not be eligible.
- If you are currently taking part in another clinical trial that involves a treatment or intervention, you may not be able to join if it would interfere with this study (confirm with trial site).
- If the study team determines that taking part in the registry would not be safe or practical for you for any reason, you may not be eligible (confirm with trial site).
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Principal Investigator: Raajit Rampal, MD, PhD, Memorial Sloan Kettering Cancer Center
Phone: 847-449-5307
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Time to Disease Progression
Can't join this trial?
Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.