Rare Disease Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
- You must be able to give your own consent to take part in the study
- You have been diagnosed by a doctor with an idiopathic inflammatory myopathy (a condition where the immune system attacks the muscles, causing inflammation), OR you are a caregiver or parent of someone who has this condition
- You may also be eligible if you have already signed up through the MIHRA Patient Contact Registry (a patient database run by the MIHRA Foundation)
Who may not be able to join:
- Children under the age of 7 years old are not eligible
- People who do not have a diagnosis of an inflammatory myopathy are not eligible
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Principal Investigator: Lesley Ann Saketkoo, MD, MPH, MIHRA Foundation
Phone: 504 822 6653
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Patient-voiced research priority topics
Can't join this trial?
Data last synced from ClinicalTrials.gov: 26 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.