Muscular Dystrophy Trial, Recruiting (NCT07409142)

Muscular Dystrophy Trial, Recruiting NCT07409142 Sponsor: FSHD Society Condition: Muscular Dystrophy

Printed from Voxsanity (voxsanity.com.au) — NCT07409142 — Data sourced from ClinicalTrials.gov. Verify directly with the trial site before attending. Not medical advice.

Back to Muscular Dystrophy

Who may be able to join

AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI

Who might be able to join this trial:

You have been diagnosed with FSHD (a muscle condition) either through a doctor's assessment or a genetic test, or you have family members with FSHD and are experiencing symptoms yourself
You are 1 year of age or older
You currently live in the United States or one of its territories
If you are 18 or older, you are willing and able to agree to take part in the study yourself
If you are under 18, a parent or legal guardian must be willing to register and give permission for you to take part, and you should also be willing to agree to participate where this applies to you

Who may not be able to join:

You live outside of the United States or its territories
You are unwilling or unable to give your own agreement to take part (or, if under 18, a parent or legal guardian is unwilling or unable to give permission on your behalf)

Important: Always verify eligibility with the trial site directly before applying.

Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.

This is a simplified plain English summary of the eligibility criteria. Full criteria are set by the trial investigators and may include additional requirements not shown here. Never self-exclude from a trial based on this summary. Contact the trial site directly to confirm your eligibility.

Last synced 27 July 2026

This study is not part of the standard drug-approval phase pathway (for example an observational, device, behavioural, or registry study), so a phase success rate does not apply.

Contact this trial

Principal Investigator: Amanda Hill, MBA, FSHD Society

Phone: 781-301-6060

Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.

GP referral letter

Print a one-page summary to share with your doctor.

Voxsanity

Clinical trials and treatments, explained plainly · voxsanity.com.au

Date:

To: My Doctor

Re: Clinical trial enquiry

I am writing to enquire about the following clinical trial which may be relevant to my care:

Trial: NCT07409142

Sponsor: FSHD Society

Phase: Not Applicable

Status: Recruiting

Condition: Muscular Dystrophy

Trial contact: 781-301-6060

More information: https://clinicaltrials.gov/study/NCT07409142

Eligibility summary (AI generated)

Written by an AI model from ClinicalTrials.gov eligibility criteria and checked on a sample basis. Please confirm against the original criteria.

Who might be able to join this trial:

You have been diagnosed with FSHD (a muscle condition) either through a doctor's assessment or a genetic test, or you have family members with FSHD and are experiencing symptoms yourself
You are 1 year of age or older
You currently live in the United States or one of its territories
If you are 18 or older, you are willing and able to agree to take part in the study yourself
If you are under 18, a parent or legal guardian must be willing to register and give permission for you to take part, and you should also be willing to agree to participate where this applies to you

Who may not be able to join:

You live outside of the United States or its territories
You are unwilling or unable to give your own agreement to take part (or, if under 18, a parent or legal guardian is unwilling or unable to give permission on your behalf)

Important: Always verify eligibility with the trial site directly before applying.

Access in Australia: A treatment being studied in a clinical trial is generally not yet listed on the PBS. Where a medicine is not approved or not available through a trial, the TGA Special Access Scheme may allow a doctor to access unapproved therapeutic goods for individual patients. See voxsanity.com.au/sas-navigator/ for a plain English explainer.

This information was sourced from ClinicalTrials.gov via Voxsanity (data last synced 27 July 2026). It is not medical advice. Please verify the trial's current status directly with the trial site before acting.

Trial details

Status

Recruiting

Phase

Not Applicable

Sponsor

FSHD Society

Registry

ClinicalTrials.gov

Start date

2 August 2024

Est. completion

1 January 2060

Where this trial is recruiting

🇺🇸 United States

Primary endpoints

Longitudinal Health Data; Self Reported FSHD Progression

Can't join this trial?

Expanded access pathways

If this trial is not available to you, other access pathways may exist. In Australia, the TGA Special Access Scheme allows access to unapproved therapeutic goods for individual patients.

TGA Special Access Scheme information

Find other recruiting trials on ClinicalTrials.gov

Data last synced from ClinicalTrials.gov: 27 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.

Trial recruitment status can change without notice between our nightly data updates. Always contact the trial site directly to confirm current recruitment status before making any decisions or travel arrangements.

View original record on ClinicalTrials.gov