Rare Disease Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
- You are currently between 15 and 25 years old and were born between 1997 and 2007
- You have a rare genetic disease that was confirmed by a genetic test, started in childhood, and is being followed at Necker hospital under one of these specialist disease centres: epilepsy without learning difficulties, skin genetic conditions (genodermatosis), bone diseases present from birth, craniofacial (face and skull) conditions, or deafness
Who may not be able to join:
- You or your parent/guardian do not want to take part in the study
- You have an intellectual disability, meaning an IQ score below 70
- You have a condition that is associated with intellectual disability, or you show any signs that may suggest intellectual disability
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Phone: +33 (0)1 42 75 45 65
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Entry into a training program, validation of a diploma, obtaining a 1st stable job
Can't join this trial?
Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.