Motor Neurone Disease Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
For people living with ALS:
- A person must have been diagnosed with ALS that is linked to a specific genetic change called C9orf72
- A person must be 18 years of age or older
- A person must be fluent in the Italian language
- A person must be able to understand what the study involves and answer the questions in an online survey
- A person must have signed a form giving their informed consent to take part
For caregivers:
- A person must be a caregiver of an ALS patient with the C9orf72 genetic change who is also taking part in this study
- A person must be 18 years of age or older
- A person must have no significant difficulties with thinking or memory
- A person must have signed a form giving their informed consent to take part
Who may not be able to join:
For people living with ALS:
- People who have a significant level of cognitive difficulty (problems with thinking, memory, or understanding)
- People who are unable to answer at least half of the questions in the online survey
- People who score 11 or higher on a standard anxiety and depression questionnaire called the HADS (confirm with trial site)
For caregivers:
- No specific exclusion criteria were listed beyond not meeting the inclusion criteria above (confirm with trial site)
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Phone: +3902619111
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Multidisciplinary care; Home care; Satisfaction of primary needs; Satisfaction of economic support; Age; Burdensome commitment; Psychological support
Can't join this trial?
Data last synced from ClinicalTrials.gov: 23 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.