Peripheral Neuropathy Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
- Both male and female patients are eligible.
- There is a minimum age requirement (confirm with trial site for the specific age).
- Patients who have social protection coverage (such as health insurance or a social security scheme).
- Patients who are able to provide written consent before any trial procedures begin — for adults over 18, this means signing themselves; for children over 4 months old, both parents or a legal representative must sign, and the child will also be asked to agree if they are able to understand; for protected adults, a legal representative signs, and the person themselves agrees if they are able.
- For patients who do not speak the language of the consent form, a translator will be arranged if needed.
- People who have a diagnosis of Bardet-Biedl Syndrome (BBS) or Alström Syndrome (ALMS), confirmed either through genetic testing or through a clinical evaluation.
- People who carry a known gene change (mutation) in a BBS-related gene or the ALMS1 gene, even if they do not fully meet the formal diagnosis criteria.
- Children are specifically encouraged to participate, as many features of these conditions develop during childhood.
Who may not be able to join:
- People who have a serious active illness or condition that could affect the data collected in the trial.
- People who are under judicial protection (a legal status assigned by a court).
- People who are currently participating in another clinical trial that has a restriction period preventing them from joining other trials.
- Adults who are not under a protection order but who have difficulty understanding information, or who are unable to understand what is being explained to them (for example, in an emergency situation).
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Phone: +33.3.69.55.19.55
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Clinical history description of Bardet-Biedl (BBS) and ALström syndromes (ALMS).; Clinical history description of Bardet-Biedl (BBS) and ALström syndromes (ALMS).; Clinical history description of Bardet-Biedl (BBS) and ALström syndromes (ALMS).; Clinical history description of Bardet-Biedl (BBS) and ALström syndromes (ALMS).
Can't join this trial?
Data last synced from ClinicalTrials.gov: 26 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.