Rare Disease Trial, By Invitation
voxsanity.com.au · Eligibility summary from public government registries · 18 August 2026 · not medical advice
Who may and may not be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who may be able to join
- People who are between 16 and 18 years old and have a complex medical history, as described by the following characteristics:
- People who have three or more long-term physical and/or mental health conditions at the same time, where the main condition is a physical health condition, and/or who have a rare disease or genetic condition.
- People who do not yet have a clearly identified adult healthcare provider or service lined up after their transition from children's care, and/or who face significant challenges related to social or environmental factors that affect their health (such as housing, income, or access to services).
Who may not be able to join
Each point below is a reason the trial team may not be able to accept someone. It is not a list of requirements to meet.
- People who have moderate to severe developmental or intellectual disabilities.
- People who are already receiving care at SickKids through a service that has an established transition program or adult provider in place.
- People who do not give their consent to participate.
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Early Identification and Transition Readiness; Early Identification and Transition Readiness; Early Identification and Transition Readiness; Early Identification and Transition Readiness - Service Satisfaction; Information Sharing and Support; Information Sharing and Support; Transition Plan; Coordinated Transition; Introduction to Adult Services; Transition Completion; Health-Related Quality of Life; Experience in the process
Can't join this trial?
Data last synced from ClinicalTrials.gov: 17 August 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.