Rare Disease Trial, Not Yet Recruiting
voxsanity.com.au · Eligibility summary from public government registries · 18 August 2026 · not medical advice
Who may and may not be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who may be able to join
- The practice is a general practice located in the United Kingdom (England, Scotland, Wales, or Northern Ireland) that takes part in Optimum Patient Care services and shares anonymised patient data with the OPCRD database.
- The practice has at least one patient who has been flagged by a quality improvement program algorithm as having a high likelihood of a rare or hard-to-diagnose condition.
Who may not be able to join
Each point below is a reason the trial team may not be able to accept someone. It is not a list of requirements to meet.
- General practices that are involved in, or affected by, other research or care activities that could significantly interfere with how the CAPTURED program is carried out.
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Principal Investigator: Ursie Smith, PhD MBChB MSci Bsc, Observational and Pragmatic Research Institute (OPRI)
Phone: 01223967855
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Primary endpoints
Rate of patients given diagnosis for rare or difficult to diagnose disease
Can't join this trial?
Data last synced from ClinicalTrials.gov: 12 August 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.