Rare Disease Trial, Not Yet Recruiting
voxsanity.com.au · Eligibility summary from public government registries · 18 August 2026 · not medical advice
Who may and may not be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who may be able to join
- People who have a confirmed diagnosis of cystinosis, based on at least one of the following: a measurement of cystine levels in white blood cells, the presence of cystine crystals in the cornea of the eye, or a genetic test result.
- Signed consent from the patient or, where needed, their legal representative must be in place before joining.
Who may not be able to join
Each point below is a reason the trial team may not be able to accept someone. It is not a list of requirements to meet.
- People who are unable to give consent themselves and do not have a legal representative available to consent on their behalf.
- There are no other specific conditions that would prevent someone from joining; people with other health conditions alongside cystinosis may still be considered eligible.
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Principal Investigator: Aude Servais, AP-HP_Hôpital Necker_Paris
Phone: 0033 1 44 38 15 15
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
Long-term clinical disease progression in cystinosis
Can't join this trial?
Data last synced from ClinicalTrials.gov: 18 August 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.