Rare disease
Craniopharyngioma
Clinical trials recruiting in Australia for Craniopharyngioma, a rare disease, as the public registries list them.
Also called: Craniopharyngeal duct tumour; Craniopharyngeal duct tumor; Rathke's pouch tumour; Rathke's pouch tumor
Follow this condition Browse A to Z Browse by body system
At a glance
4 trials recruiting in Australia
16 trials recruiting overseas
1-9 / 100 000 (Point prevalence, Europe, Validated) prevalence
All ages age of onset
14 October 2026 date last checked
Trials in Australia
This Australian count is likely to be on the low side. It counts the trials this site files under this condition; the registry’s own search is broader and also returns closely related conditions, some of which have their own page here. If you are searching widely, check the registry as well — every trial below links to its own record.
-
Recruiting Phase 2
Phase 2 study for people with Craniopharyngioma
Where- Sydney Children's Hospital, Randwick (NSW) — Recruiting
- Queensland Children's Hospital, South Brisbane (QLD) — Recruiting
- Perth Children's Hospital, Perth (WA) — Recruiting
Who can join Age 1 Year to 39 Years. Sex Anyone, regardless of sex. Healthy volunteers Not accepted.Sponsor Nationwide Children's HospitalTimelineStarted 16 December 2022 Today 16 October 2026 Estimated completion 1 December 2027NCT05233397 · Checked 11 October 2026
-
Recruiting Phase 2
Phase 2 study for people with Craniopharyngioma
Where- Sydney Children's Hospital, Randwick (NSW) — Recruiting
- Queensland Children's Hospital, South Brisbane (QLD) — Recruiting
- Perth Children's Hospital, Perth (WA) — Recruiting
Who can join Age 1 Year to 39 Years. Sex Anyone, regardless of sex. Healthy volunteers Not accepted.Sponsor Nationwide Children's HospitalTimelineStarted 10 April 2023 Today 16 October 2026 Estimated completion 10 April 2027NCT05286788 · Checked 11 October 2026
-
Recruiting Phase 2
Phase 2 study for people with Craniopharyngioma
Where- John Hunter Children's Hospital, New Lambton Heights (NSW) — Recruiting
- Royal Hobart Hospital, Hobart (TAS) — Recruiting
- Children's Cancer Centre, Monash Children's Hospital, Clayton (VIC) — Recruiting
- Royal Children's Hospital, Childrens' Cancer Centre, Parkville (VIC) — Recruiting
- Perth Children's Hospital, Nedlands (WA) — Recruiting
Who can join Age 1 Year to 39 Years. Sex Anyone, regardless of sex. Healthy volunteers Not accepted.Sponsor Sabine Mueller, MD, PhDTimelineStarted 12 September 2022 Today 16 October 2026 Estimated completion 1 March 2027NCT05465174 · Checked 11 October 2026
-
Recruiting Phase 2
Phase 2 study for people with Craniopharyngioma
Where- Integrated Clinical Oncology Network (ICON), South Brisbane (QLD) — Recruiting
- Peter MacCallum Cancer Centre, Melbourne (VIC) — Recruiting
Who can join Age 18 Years and over. Sex Anyone, regardless of sex. Healthy volunteers Not accepted.Sponsor Parabilis Medicines, Inc.TimelineStarted 23 May 2023 Today 16 October 2026 Estimated completion 1 April 2027NCT05919264 · Checked 14 October 2026
Trials overseas
16 trials for this disease are open to new participants outside Australia, as ClinicalTrials.gov listed them on 11 October 2026. Voxsanity does not publish a page for any of them; the searches below reach them at the registry.
These overseas counts are likely too high. They come from the registry’s own search, which expands a condition name to related conditions, so some of the trials counted are for a different disease in the same family.
Search ClinicalTrials.gov Search the WHO registry portal Joining a trial overseas
Trials not shown here
Some Australian trials are registered only on the Australian New Zealand Clinical Trials Registry and are not shown here. Search them at Australian Clinical Trials.
Key facts
Orphadata Science: Free access data from Orphanet. © INSERM 1999. Available on https://www.orphadata.com. Used under CC BY 4.0. Source: Orphanet / Orphadata (orphadata.com).
Sources and dates
- ClinicalTrials.gov – trial records, statuses and site lists
- Orphanet / Orphadata – prevalence, age of onset, inheritance, genes and alternative names, used under CC BY 4.0
- ClinicalTrials.gov processing date: 7 October 2026.
- This page last checked by Voxsanity: 14 October 2026.
Voxsanity reformats data from public registries into this layout. It does not edit, interpret or add to what the registry published.
Not medical advice.
Individual trial records are refreshed on a rolling basis rather than all at once, so a record may be up to several weeks old. Each trial page and trial card shows the date its own record was last synced. Where a record has lagged, its status, sites and enrolment can differ from the current registry state in either direction, so check the registry link on the trial page before acting on them.
Orphanet citation
Orphadata Science: Free access data from Orphanet. © INSERM 1999. Available on https://www.orphadata.com. Used under CC BY 4.0. Source: Orphanet / Orphadata (orphadata.com). Accessed 20 September 2026.
Craniopharyngioma is one of the rare diseases tracked on the Voxsanity rare disease hub, where you can compare it with every other rare condition we follow and filter trials by country.
Tell us which conditions matter to you
We use requests to help decide what to add next. Telling us about a condition is not a promise that we will add it, and we cannot say when any condition might appear.