Rare disease

Interstitial Cystitis

Clinical trials recruiting in Australia for Interstitial Cystitis, a rare disease, as the public registries list them.

Also called: Bladder pain syndrome; IC/BPS; IC/PBS; Interstitial cystitis/bladder pain syndrome; Interstitial cystitis/painful bladder syndrome; Painful bladder syndrome

Sources: MedlinePlus, Orphanet Checked: 16 October 2026 Not medical advice

At a glance

No trials recruiting in Australia right now.

37 trials recruiting overseas

1-5 / 10 000 (Point prevalence, Europe, Not yet validated) prevalence

All ages age of onset

16 October 2026 date last checked

Trials overseas

This is where the research for Interstitial Cystitis is happening right now. Nothing is recruiting in Australia, so the overseas record is the useful one.

37 trials for this disease are open to new participants outside Australia, as ClinicalTrials.gov listed them on 11 October 2026. Voxsanity does not publish a page for any of them; the searches below reach them at the registry.

These overseas counts are likely too high. They come from the registry’s own search, which expands a condition name to related conditions, so some of the trials counted are for a different disease in the same family.

Trials not shown here

Some Australian trials are registered only on the Australian New Zealand Clinical Trials Registry and are not shown here. Search them at Australian Clinical Trials.

Key facts

Inheritance Unknown
Genes Not recorded
Prevalence 1-5 / 10 000 (Point prevalence, Europe, Not yet validated)
Age of onset All ages

Orphadata Science: Free access data from Orphanet. © INSERM 1999. Available on https://www.orphadata.com. Used under CC BY 4.0. Source: Orphanet / Orphadata (orphadata.com).

About Interstitial Cystitis

The text below is reproduced exactly as its source published it. It has not been edited, shortened or rewritten.

Interstitial cystitis (IC) is a condition that causes discomfort or pain in the bladder and a need to urinate frequently and urgently. It is far more common in women than in men. The symptoms vary from person to person. Some people may have pain without urgency or frequency. Others have urgency and frequency without pain. Women's symptoms often get worse during their periods. They may also have pain with sexual intercourse. The cause of IC isn't known. There is no one test to tell if you have it. Doctors often run tests to rule out other possible causes of symptoms. There is no cure for IC, but treatments can help most people feel better. They include: - Distending, or inflating, the bladder - Bathing the inside of the bladder with a drug solution - Oral medicines - Electrical nerve stimulation - Physical therapy - Lifestyle changes - Bladder training - In rare cases, surgery NIH: National Institute of Diabetes and Digestive and Kidney Diseases

US source; availability in Australia may differ.

Source: MedlinePlus Health Topics (medlineplus.gov), public domain (U.S. National Library of Medicine). Read the full source.

Sources and dates

  • MedlinePlus – the About text above, reproduced exactly
  • Orphanet / Orphadata – prevalence, age of onset, inheritance, genes and alternative names, used under CC BY 4.0
  • This page last checked by Voxsanity: 16 October 2026.

Voxsanity reformats data from public registries into this layout. It does not edit, interpret or add to what the registry published.

Not medical advice.

Individual trial records are refreshed on a rolling basis rather than all at once, so a record may be up to several weeks old. Each trial page and trial card shows the date its own record was last synced. Where a record has lagged, its status, sites and enrolment can differ from the current registry state in either direction, so check the registry link on the trial page before acting on them.

Orphanet citation

Orphadata Science: Free access data from Orphanet. © INSERM 1999. Available on https://www.orphadata.com. Used under CC BY 4.0. Source: Orphanet / Orphadata (orphadata.com). Accessed 20 September 2026.

ORPHA:37202

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