Cardiomyopathy Trial, Recruiting
Who may be able to join
AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI
Who might be able to join this trial:
- You have been diagnosed through genetic testing with a RASopathy (a group of conditions caused by changes in a specific set of genes that affect how cells grow and communicate)
- A heart scan (echocardiogram) has shown that the walls of your heart are thicker than normal, with or without a blockage in the heart's outflow
- You were admitted to hospital between 1 January 2015 and 30 June 2019 because of heart failure, OR you developed worsening heart failure during any hospital stay within your first 6 months of life
Who may not be able to join:
- You are currently taking a type of medication called an mTOR inhibitor or a MEK inhibitor (specific drugs that target certain cell signalling pathways — check with the trial site if you are unsure whether your medication falls into these categories)
- It is not possible to find or work out your heart failure severity score (called a "Ross Score") from your medical records from when you were in the first 6 months of life
Important: Always verify eligibility with the trial site directly before applying.
Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.
Contact this trial
Phone: +49 89 1218-2441
Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.
GP referral letter
Print a one-page summary to share with your doctor.
Trial details
Where this trial is recruiting
Primary endpoints
To define the one-year transplant-free survival rate of patients with infantile-onset RASopathy-associated hypertrophic cardiomyopathy, admitted to the hospital with congestive heart failure by 6 months of age.
Can't join this trial?
Data last synced from ClinicalTrials.gov: 22 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.