Huntington's Disease Trial, Recruiting (NCT06475898)

Huntington's Disease Trial, Recruiting NCT06475898 Sponsor: Huntington Study Group Condition: Huntington's Disease

Printed from Voxsanity (voxsanity.com.au) — NCT06475898 — Data sourced from ClinicalTrials.gov. Verify directly with the trial site before attending. Not medical advice.

Back to Huntingtons Disease

Who may be able to join

AI generated eligibility summary. Written by an AI model from the official source data and checked on a sample basis. It can contain mistakes, so confirm anything important against the original source. How we use AI

Who might be able to join this trial:

You must be 18 years of age or older
You must be willing and able to give your consent to participate using an electronic device
You must have been told by a doctor that you have Huntington's disease (HD), OR you have had genetic testing that found you carry the gene change that causes HD but have not yet been officially diagnosed with HD
You must be able to answer online survey questions yourself, or be able to direct another person to enter your answers for you
You must be able to move around on your own and manage at least some of your personal daily needs
You must be able to read and understand English
You must be willing to create a personal identifier code based on some of your basic personal information
You must currently live in the United States or its territories, and must continue to live there for the duration of the study
You must have access to an electronic device (such as a phone, tablet, or computer) and a secure internet connection

Who may not be able to join:

There are no specific exclusion criteria listed for this trial (confirm with trial site)

Important: Always verify eligibility with the trial site directly before applying.

Based on publicly available eligibility criteria from ClinicalTrials.gov. Verify directly with the trial site before acting. This is not medical advice.

This is a simplified plain English summary of the eligibility criteria. Full criteria are set by the trial investigators and may include additional requirements not shown here. Never self-exclude from a trial based on this summary. Contact the trial site directly to confirm your eligibility.

Last synced 28 July 2026

This study is not part of the standard drug-approval phase pathway (for example an observational, device, behavioural, or registry study), so a phase success rate does not apply.

Contact this trial

Principal Investigator: Jamison Seabury, University of Rochester Center for Health + Technology

Phone: 800-487-7671

Contact details sourced from ClinicalTrials.gov. Verify directly with the trial site before attending.

GP referral letter

Print a one-page summary to share with your doctor.

Voxsanity

Clinical trials and treatments, explained plainly · voxsanity.com.au

Date:

To: My Doctor

Re: Clinical trial enquiry

I am writing to enquire about the following clinical trial which may be relevant to my care:

Trial: NCT06475898

Sponsor: Huntington Study Group

Phase: Not Applicable

Status: Recruiting

Condition: Huntington's Disease

Trial contact: 800-487-7671

More information: https://clinicaltrials.gov/study/NCT06475898

Eligibility summary (AI generated)

Written by an AI model from the ClinicalTrials.gov eligibility criteria and checked on a sample basis. Please confirm against the original criteria.

Who might be able to join this trial:

You must be 18 years of age or older
You must be willing and able to give your consent to participate using an electronic device
You must have been told by a doctor that you have Huntington's disease (HD), OR you have had genetic testing that found you carry the gene change that causes HD but have not yet been officially diagnosed with HD
You must be able to answer online survey questions yourself, or be able to direct another person to enter your answers for you
You must be able to move around on your own and manage at least some of your personal daily needs
You must be able to read and understand English
You must be willing to create a personal identifier code based on some of your basic personal information
You must currently live in the United States or its territories, and must continue to live there for the duration of the study
You must have access to an electronic device (such as a phone, tablet, or computer) and a secure internet connection

Who may not be able to join:

There are no specific exclusion criteria listed for this trial (confirm with trial site)

Important: Always verify eligibility with the trial site directly before applying.

Access in Australia: A treatment being studied in a clinical trial is generally not yet listed on the PBS. Where a medicine is not approved or not available through a trial, the TGA Special Access Scheme may allow a doctor to access unapproved therapeutic goods for individual patients. See voxsanity.com.au/sas-navigator/ for a plain English explainer.

This information was sourced from ClinicalTrials.gov via Voxsanity (data last synced 28 July 2026). It is not medical advice. Please verify the trial's current status directly with the trial site before acting.

Trial details

Status

Recruiting

Phase

Not Applicable

Sponsor

Huntington Study Group

Registry

ClinicalTrials.gov

Start date

25 June 2024

Est. completion

1 December 2026

Where this trial is recruiting

🇺🇸 United States

Primary endpoints

PRO natural history; Demographic characteristics; Assess the ability to consent and enroll

Can't join this trial?

Expanded access pathways

If this trial is not available to you, other access pathways may exist. In Australia, the TGA Special Access Scheme allows access to unapproved therapeutic goods for individual patients.

TGA Special Access Scheme information

Find other recruiting trials on ClinicalTrials.gov

Data last synced from ClinicalTrials.gov: 28 July 2026. Trial status can change. Always verify current status directly with the trial site before making any decision.

Trial recruitment status can change without notice between our nightly data updates. Always contact the trial site directly to confirm current recruitment status before making any decisions or travel arrangements.

View original record on ClinicalTrials.gov